re re re re re re re write

So I’m working on the book again. I’m re-writing the beginning (AGAIN)

I was going to leave that for last, but I can’t stand it. I have to re-write it so that the thing seems like it’s one piece.

If it’s one piece, then I can tell better what parts don’t fit.

trying

So…I feel as I am squeezed dry of interesting thoughts.

I have a lot of uninteresting things circling in my head…

should I start the dog on obedience training?

Should I paint tonight or vaccuum?

Does the sniffles my husband have mean I should shower him with love, or leave him alone (since he’s grumpy anyway)?

Where will I inject myself today…which of the many choice spots will accept the copaxone needle gently today?

Should I call the DMV for an appointment to change my name? Will they take a new photograph for my license?

Should I get over my addiction to whitespace on my blog?

It’s to the point where I am annoying myself. Petty DETAILS…all the uninteresting nigglies of life…bleah.

It makes me want to call a friend and we can run off and be witty and sparkling together..YAY!

But what witty and sparkling person would want to spend time with dull drabby detail dragging me?

and I have to paint, and go to the DMV, and walk the dog and be sweet to the man and reorganize my website and shoot myself…hip or thigh?…i forget…but I’m BUSY

and BORED

The many shades of white

And I’m not even talking off white and arctic white, or seabreeze white or all the other versions of beige that martha stewart might call white.

I mean white white.

I have just finished caulking the new bathroom. I grouted it with white grout, and the white grout went around white tile.

THe caulk went around a white shower base and a white toilet.

The white toilet has a white toilet seat. It is the conjunction of the white toilet and the whilte toilet seat that made me realize that all whites are not created equal.

Because to me, they are glaringly different shades of white.

And once you start noticing the different shades of white, it is an avalance. All those above items: grout, tile, toilet, shower base and caulk are different shades of white.

I guess I just have to be open minded about it–not b so black and white.

8 years ago

Today, Chris and I met at Capp’s Pizza on Castro street in downtown Mountian View.

I did not expect that we would get married.

But life is full of surprises.

Tonight, we will celebrate that we met by making enchiladas together.

Pie season

This month is when a lot of pies happen.

There is pumpkin, of course, and many many other types. Pecan, Fruit (particularly apple), berries, mince meat (yuk), and the various pudding-type pies.

I like pie. I like to make it from scratch. I bought some pumpkin to get a start on it. I make a mean walnut pie. Grandma Ruth has mentioned a fondness for strawberry cream pie…Maybe I should try to make that…

but there are a lot of other things vying for my attention.

Really, though, pie is important and should not be neglected.

walnut pie

…isn’t that what we had a telethon for…?

So this week it was finally diagnosed. My doctor read my spine juice and diagnosed me with Multiple Sclerosis.

There is some reason, and nobody quite knows why, that my body decides to attack my nervous system and eat away at the myelin

It was scary when they first said I might have it. It was mostly scary because I didn’t really know what it was. But I’ve learned a lot more about it since then, and it seems like it’s something I can live with.

They have super-duper awesome drugs for it now. I’m taking copaxone. I had my first chance to inject myself with this stuff yesterday. It hurt, I’m not going to lie to you. It didn’t hurt to put the needle it, but it stung for the first 15 minutes or so and then it felt like a bruise the rest of the day.

But they say that it doesn’t hurt so much over time, that your body gets used to it.

Chris thinks i should inject it at night, and then maybe by the time I wake up it won’ t hurt anymore. I’ll try that. In fact, I’ll try that tonight. My first unsupervised injection happens tonight. Oh, yeah, you have to inject yourself with this stuff every day.

Between me and my diabetic cat, we will be the house of needles.

Check this out, though. The copaxone is a lovely drug. And I have lovely medical coverage. Kaiser is quite the comprehensive HMO. 5 bucks is what I pay for a months supply.

But Copaxone costs $1693 for a month’s supply. Yes, that’s right. One thousand six hundred ninety three dollars. That’s $56.43 per shot… and $20,316 a year. Holy God!

I’m calling it my medical bling. I will not be taking medical coverage for granted anymore. Not for the rest of my life.

I am feeling very blessed that I have the most stable job I’ve ever had, probably the most stable job it’s possible to have in America in the 21st century. My boss is the best boss I’ve ever had. So, I don’t feel insecure.

By all accounts I have a super light case of the MS right now. And I’m going on the drugs that are supposed to keep it that way.

I thought about not telling people. I mean, maybe people would be all weird. I wouldn’t have to tell. Looking at me, there is no way to tell that anything is wrong with me.

Actually, all the million tests they did on me to diagnose show that I’m a picture of health. Low blood pressure, low cholesterol. The only thing wrong with me is that my body is trying to eat my brain.

Isnt’ it ironic?

Well, MS doesn’t shorten people’s life. Doesn’t kill you. Heart problems and cancer can kill you. I got a different kind of disease.

Anyway, I thought about not telling people. But then I thought, well, why not? I’ve always been an open book. The benefit I might reap from people not knowing seemed slight in comparison with the effort it would take for me to restrain from talking about it.

Plus, I read that it’s protected under the disabilities act…and I can’t get fired for having it.

In last month’s issue of Neurology Now (the only magazine in the nuerology dept. lobby..I’m quite up on it now) one guy did get fired for having MS….he was blind in one eye…But he was old, and that was before hmankind advanced enough to have laws against being mean to people.

Yes, and one of the first things I did when I heard I might have this is tell a few close friends. and then it turned out that almost every one of them knew somebody that had it. And that that person had been diagnosed, scared, and then went on with their life.

If I tell people about this, when another person gets diagnosed and goes to tell their nearest and dearest, those people might know me (or read this blog). That person might get some comfort from knowing somebody who is doing okay.

It’s only fair. That’s what living an open life is for…To be an example to other people of what happens.

It’s been an exciting month.

entry

There are a lot of things to talk about. I have had a full brain of thoughts.

But I have had a full schedule too.

umm…The leaves are falling. Dog is good, cat is good, I am okay.

Chris is okay.

The dollar is falling against the Euro, which is not okay, but we will deal with it.

not so many shopping days until christmas.

be good to one another.

More to come.

Mr. Mantis

I discovered a large praying mantis on my curtains last night.

I called Chris over to take care of this 6-inch insect. This seemed like a husband responsibility.

He is kind to mantises. He found a box and scooped the mantis in. then he released the mantis on the rose bushes.

This morning Chris checkec, and the mantis was still among the roses. It was alive.

It is good to find a man who is kind to mantises.

GLOW

Glow worm Lyrics

Shine little glow-worm, glimmer, glimmer
Shine little glow-worm, glimmer, glimmer
Lead us lest too far we wander
Love’s sweet voice is callin’ yonder
Shine little glow-worm, glimmer, glimmer
Hey, there don’t get dimmer, dimmer
Light the path below, above
And lead us on to love

Glow little glow-worm, fly of fire
Glow like an incandescent wire
Glow for the female of the species
Turn on the AC and the DC
This night could use a little brightnin’
Light up you little ol’ bug of lightnin’
When you gotta glow, you gotta glow
Glow little glow-worm, glow

Glow little glow-worm, glow and glimmer
Swim through the sea of night, little swimmer
Thou aeronautical boll weevil
Illuminate yon woods primeval
See how the shadows deep and darken
You and your chick should get to sparkin’
I got a gal that I love so
Glow little glow-worm, glow

Glow little glow-worm, turn the key on
You are equipped with taillight neon
You got a cute vest-pocket *Mazda*
Which you can make both slow and faster
I don’t know who you took the shine to
Or who you’re out to make a sign to
I got a gal that I love so
Glow little glow-worm, glow
Glow little glow-worm, glow
Glow little glow-worm, glow
Glow little glow-worm, glow

the ribbon-cutting of Christmas shopping

Today Claremont has The Village Venture. Sounds a bit like the townsfolks all going for a hike…Pitchforks and torches optional.

But no, it’s kind of equivalent to the art and wine festivals up there in Northern Cal. It’s a big crafty kind of fair. One day only, a bunch of people get out and sell their wares. There are also politicians and community organizatiosn distributing pamphlets(hmm…maybe that’s a selling of wares too).

It takes place on the last Saturday in October, and the close down the streets. It’s mostly an outdoor affair, so there are a lot of dogs in halloween costumes.

It’s fun, and with all the lovely little things for sale you kinda are looking for an excuse to buy them. Christmas is the universal excuse to buy lovely little things.

So we consider the Village Venture to be the official opening of the Christmas Shopping season.